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how to deal with close family members being unsensitive... Options
Hannah-L
#1 Posted : Wednesday, January 06, 2010 6:47:21 PM Quote
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asin my dad, who is also a GP.
Had a hard day at work, so decides to flip out at me;
i have been off school today because i have a really bad cold and cough, and have slept 6 hours in the past 2 days because of it. my wrists are bad, and i spent 5 hours today doing revision for my science exams next week.
so he says 'im not happy about you staying home over a cold, its pathetic, you'll be fine. and don't give me talk about a flare up because i can just do a blood test on you to see for myself'
i stormed off crying with my dinner upstairs, and now mum and dad are rowing.
i never exajurate when i feel ill, infact i dont show enough how unwell i feel.
how do i cope with stuff like that? you'd think because he's a doctor he'd understand, but as soon as i mention 'ill', he puts on a front and becomes the doctor instead of the dad, it's starting to really get to me...
Blue Star
#2 Posted : Wednesday, January 06, 2010 6:52:59 PM Quote
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Hi Hannah, im really sorry that your dad is like this with you, as you say you would think him of all people would understand !
Hope you feel better soon x
MaryLewis
#3 Posted : Wednesday, January 06, 2010 7:00:58 PM Quote
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Hi Hannah
I am so sorry you dad is acting like your GP instead of acting like your dad
yes he could do a blood test on you but does not always show you are having a flare
I remember my old RA doctor could never understand the pain you feel and how you could not walk right with the knee pain until he broke his own knee then he did have some idea
doctors and RA nurses know all about this illness they have read all there is to read but really they do not have a glue about it they do not have to live with the tiredness pain and every-thing else that comes with this illness
I am sorry your mum and dad are having a row
you try not to worry (that is easy for me to say I know) but you are the one who will end up worse
please take care
Mary L
sorry Hannah that is all I can think of to say to you
smith-j
#4 Posted : Wednesday, January 06, 2010 7:02:36 PM Quote
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Hannah

I am so sorry that you are having trouble with your Dad. It must be difficult for both you and your parents. Maybe your Dad feels a little helpless in trying to control your condition. I know we can all say thoughtless things when we have had a bad day at work. I can only suggest that maybe you sit down with both of your parents and tell them how you really feel and not hide how ill you feel sometimes. After all if your Dad had carried out the blood test he threatened, then maybe he might have been surprised by the results. Keeping your feelings to yourself is not going to help. You must talk to someone, if not your parents, then I presume that you do have your own GP which maybe you could talk to.
Venting your frustration on this site is a good start and I am sure all of us will say that any time you need to talk we are here for you. We know how you feel. Having an illness can be very lonely, especially when you can look well from the outside.

I hope that you get some comfort soon and feel better. Working for your exams must also be adding extra strain, so take care and rest as much as you can.

Jackie
xx
hen
#5 Posted : Wednesday, January 06, 2010 7:28:03 PM Quote
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Thinking of you Hannah.

I am sorry that your dad has upset you..maybe he is frustrated that he can't make you better..if you know what I mean. It must be so hard for your mum and dad to see you ill but of course it is harder for you going through it. You are under a lot of pressure at the moment with your illness, exams etc.

Was your school open today ....most of the schools here were closed due to the weather. I think you did very well to revise so hard when you're feeling ill and tired. My youngest daughter who is about your age (Year 10) was off due to the school closure but instead of revising (she too has 3 GCSE exams next week) she spent the day making a snowman and baking gingerbread men. I can feel a nagging mother moment coming on! LOL. Still, the gingerbread men were yummy!

Take care and try not to get too upset.

Hope you get a better night's sleep tonight.

hugs
Diane x
Debbie11
#6 Posted : Wednesday, January 06, 2010 8:05:58 PM Quote
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Hannah, I think you are amazing to have done so much revision when you are feeling so unwell. Was your school open today, my youngest sons school was shut and my eldest sons college was shut. It isn't the weather to be out and about with a bad cold and cough. Maybe your dad is unable to handle seeing you so poorly. Also, it is hard to see how much this illness impacts on us. Even a blood test doesn't always reflect it.

You take care and I hope you feel better soon.

Deb x
jenni_b
#7 Posted : Wednesday, January 06, 2010 8:09:31 PM Quote
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HI Hannah,

Sorry that your Dad is being a grump.

Sometimes drs are really clever at head knowledge but are not so great at gentleness and things of the heart.
My cousins and her hubby are both GPs and they have been great at digging out lots of knowledge.

I would bet a lot of money if one of his colleagues started to have a go at you about "getting on with things" that he would be pretty defensive of you.

Hannah, when you get the chance- look here- www.butyoudontlooksick.com and print off the spoon theory.

When I was first ill, I was married to someone else (I was only 20 when dx) and I was very poorly and he didnt care a fig. He just could not deal with the permanence of things and spent a lot of time having a go at me for constantly falling asleep. He was not a medic- but he just a) was a PIG(!) and b) couldnt deal with it.

My husband now is a lovely man who is a nurse. In fact I met him when I was a patient and he was on the ward (contraversial!)

One other thing- we have people we know and the Dad is a Dentist, he wants to come home and its anything for an easy life. They do not do stress in anyway- anyone who has a lot of stress they step away from. which is why we are not very close to them.

Good grief there are some funny people about. Anyway- I DO UNDERSTAND what it is like to have early Rheumatoid and have a heavy cold and I know that it is double what other people face and it lasts longer.

Love

Jenni xx
how to be a velvet bulldoser
Calmwater22
#8 Posted : Wednesday, January 06, 2010 8:45:55 PM Quote
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Smile Hello Hannah ahh hope nasty cold cough goes soon and sleep is way of healing you done evry evry well doing 5 hours revision feeling so rough with RA acting up to.
so sorry your dad got cross and rowing.
let them sort it out.

grr not nice atompshere for you pray all calms down and he grows to be more undestanding towards you.
much lv Melly
cuddly cats make my world seem so much more fun
volfram
#9 Posted : Wednesday, January 06, 2010 8:57:48 PM Quote
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Hi Hannah,
You are Amazing. Getting on with your revising while feeling pretty yuk & not much sleep must be so hard to push yourself.
could you have a quiet word with Dad when He and you are not so stressed and tell him like you just told us how ill you sometimes feel but don't like to make a fuss. you sound so sensible, like you know he had a stressful day, felt he was taking it out on you.
If you feel you can't do this then like a lot of us think, come on here and have a good Rant don't build it up inside.
hope you feel better soon.
sue v xx
dorat
#10 Posted : Wednesday, January 06, 2010 9:17:59 PM Quote
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Hi Hannah,
Sorry to hear you've had to cope with this.
Your Dad will be frustrated that he can't help you and doesn't like seeing you so ill, but also he is only one of many doctors who do not understand RA.
You only have to look through the threads on this forum and you will find lots of references to doctors not understanding what we go through.
When he calms down have a serious talk with him and tell him exactly how your RA affects you.
Do you have the NRAS booklets you got when you joined? These will help him understand RA far better than any of his medical books.
So as well as him misunderstanding you , you have probably misunderstood him and expect him to know all about your illness, when even if he knows the textbook details, he doesn't know how it affects us in our daily lives etc so give him the benefit of the doubt! (I'm not sticking up for him, mind!)
Good luck with it and I hope your cold is better soon.
Well done for doing all that revising!
Lots of love, Doreen xx
RedDog
#11 Posted : Wednesday, January 06, 2010 9:20:14 PM Quote
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Hannah-L wrote:
asin my dad, who is also a GP..............., he puts on a front and becomes the doctor instead of the dad, .


That's because he can't handle the stress of seeing his daughter unwell. You said he is a GP. Most GPs know diddly squat about the true effects of RA.

I'm sure we've told you before that because of your condition you will be given extra time to do exams etc. I know, because my youngest lad, now 19, had some mental health troubles when he was 15.

Take it easy!

Stewart.
A friend is someone who knows all about you but loves you anyway!
amanda_lewin
#12 Posted : Thursday, January 07, 2010 12:27:40 AM Quote
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Oh dear Hannah,

I am so sorry that this has happened but I'm afraid to say just because your Dad is a GP, he may not really understand RA at all.

Many many GPs have no experience with RA and even they may put it into the box of arthritis.

STILL, it is NOT reasonable behaviour and I am sure once he has calmed and you feel able to, you can sit and just tell him how you really feel. You mentioned you don't often show how much pain you're in, I can really really sympathise with this as I had RA since I was nearly 9 and very often, even as a young girl, would withold the amount of pain and anxiety this illness caused me. I still do, and I am in my 30s now!

Just as parents hate to see their precious children ill, and know it is out of their control, we, as children, hate to cause our parents pain and suffering too.

It is incredibly hard to carry on studying with RA...I had so many struggles with it but it will strenghten you in the long term and make you an even more courageous and inspiring young lady!

God Bless,
Amanda
lizziemouse
#13 Posted : Thursday, January 07, 2010 12:43:31 AM Quote
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Take care Hannah, we understand and are here to listen, you do sound very sensible and realistic as well as hard working with all that studying.
....... your dad may well understand too but perhaps find it difficilt or almost impossible to separate medical thoughts from family thoughts.....
Im sure deep down all he really wishes is he could make you better but in any relationships, frustrations and fears can often mean feelings come out completely wrong and upset the people we are closest to, hope things are a bit happier at home now. When calmer i really hope you can talk together about how things really are and that you feel listened to and understood more xx
Meanwhile, try concentrate on getting better and take care of yourself, hope you get some good sleep.
Big hugs ~ Liz xx
Mandy_M
#14 Posted : Thursday, January 07, 2010 10:17:09 AM Quote
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How are you feeling today, Hannah? Did you get much sleep? Many people have mentioned that your Dad might well be feeling helpless around your illness, and I also agree with those who have suggested you talk with him when you are both calmer.

One way of starting this conversation is along the lines of: When I was off school the other day, and you spoke to me sharply, I felt ..... and explain how hurt you felt. It might not work, but perhaps worth a try.

You are being very mature about your life, when it is so much more complicated that other teenagers. I hope that aches are less today.

Oh! and keep ranting on here!!
MandyM
jeanb
#15 Posted : Thursday, January 07, 2010 11:52:58 AM Quote
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Dearest Hannah

I'm another one who thinks you are petty amazing-not to say beautiful!

I have to agree with what has been said before - your Dad probably finds it very very hard to see you suffering so much and yet be unable to do anything about it. I find it almost impossible to cope when my daughter is very ill - I think all parents do.

Stay nice and tucked up, keep warm and hopefully the horrid cold will pass. I'm sure it isn't easy to revise when you feel so lousy, so just take it a step at a time and do what you can.

Maybe you could talk to your own GP about this - as someone else has suggested, and also sit down with both your parents (oerhaps armed with the NRAS booklets) and tell them EXACTLY how you feel. It will probably take a lot of courage, but remember we are always here for you..

Much love to you

Jeanxxx

Anthea1948
#16 Posted : Thursday, January 07, 2010 12:07:49 PM Quote
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Oh, Hannah, poor you. As if it isn't enough to cope with the RA and a cold (which always makes the RA worse, imho), your dad's managed to upset you as well.

Lots of sensible things have already been said, especially the bits about your dad finding it hard to cope with not making you better - after all, he is a doctor, and that's his job, it must be really frustrating for him. And also the bits about it doesn't matter how much "head" knowledge you have, it's not the same as experiencing it for yourself.

Hannah, most of us on here have some idea of how you're feeling right now and I'm glad you know you can come on here and share things with us, you'll always find a sympethetic ear or ten.

Hope your cold feels better soon; I'm sure things will blow over with the row with your mum and dad - he's just being a parent, Hannah; because he loves you he wants what's best for you, but I know that doesn't make it any easier on you.

Take care

Anthea x
Tabbycat
#17 Posted : Thursday, January 07, 2010 12:30:40 PM Quote
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RedDog wrote:
Hannah-L wrote:
asin my dad, who is also a GP..............., he puts on a front and becomes the doctor instead of the dad, .


I'm sure we've told you before that because of your condition you will be given extra time to do exams etc. I know, because my youngest lad, now 19, had some mental health troubles when he was 15.

Take it easy!

Stewart.



I was allocated extra time to do my ILEX exams, just need to tell them in advance you have RA and request extra time.
Carol
Hannah-L
#18 Posted : Thursday, January 07, 2010 1:34:07 PM Quote
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thankyou everyone for all of your suggestions and support.
i'm still not feeling better, forced myself out of bed and to the bus stop to find the bus wasn't running haha! the snow + ice is reallly bad here.
the school's still open, because our headteacher NEVER closes it, but not many people have been able to get there.
doing more biology revision at the moment, getting pretty fed up with it but i know mum will nag if i don't.
i haven't really spoken to Dad, he seemed to be in a bad mood again this morning because he has something to complete for work and has a deadline to meet, but can't get the paperwork because of the snow.
i can understand he might feel a little helpless, and he's having a really hard time because one of his collegues lost his mum last week, and my grandad (dad's dad) has terminal cancer, and even though he doesn't speak about it, i know he's struggling; but grandpa wouldn't want him to be snappy and distant!
he sarcastically said sorry last night, after mum had put him in his place. i love my mum, she understands everything so well; she understands better than i do!
i think i'll just leave him be untill he wants to talk. maybe i need to toughen up a bit and learn to make a joke out of it or something.
RedDog
#19 Posted : Thursday, January 07, 2010 3:40:41 PM Quote
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Hannah-L wrote:
............... and learn to make a joke out of it or something.



A wise decision!......It nearly always works!
A friend is someone who knows all about you but loves you anyway!
Maria_R
#20 Posted : Thursday, January 07, 2010 4:00:18 PM Quote
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Hi Hannah

Sorry to hear that you've been so rough. Colds are not trivial, and with a compromised immune system they can really hit us hard. Plus there are some very nasty ones around at the moment.

I can't really add any more to what has already been said, but it was interesting to hear about your dad's problems. Although it doesn't excuse his behavour towards you, maybe he is struggling to cope with the emotion of everythng.I think that people often take things out on their nearest and dearest. We're going through a difficult time at the moment as my parents are both very ill (dad has been in hospital for 7 weeks) and mum recently lost 2 of her sisters. My brother still lives at home and instead of being uspportive to mum he's obnoxious and very abusive to her. He won't listen to anybody . I think he's struggling to cope with it all and his own relationship problems and that's his way of dealing with it. I take a deep breath and try to be calm but he's really upset me at times.


As for school not closing- tell me about it! My head's the same. Our school was open today but I didn't go in as my husband refused to drive in the ice. No doubt that will be a black mark agianst me!

Good luck with your exams.

big hugs

Maria
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